I'm working hard every day to help improve the delivery of family-centered care to CF patients everywhere. Please visit my blog to keep track of my adventures mixed in with some personal perspectives about Living in Chronicity.
Will you take a step today to help give Allison more tomorrows? Please consider joining us for Great Strides 2009...
A Note to Our Visitors:
Thank you for taking the time to visit our website today. The links on the left will take you a number of places you never even thought to look for, but they're there to help you begin to understand our journey. My hope is that by sharing some of this information with you, you will take away some knowledge, some awareness and some sense of inspiration to live each of your days to the fullest and never take for granted the gifts you have in your life today.
This site is dedicated to my daughter, Allison Grace, who has Cystic Fibrosis. You can read all about her story by clicking the link on the left hand side of the page. Her bravery and perseverance have taught me so much in the last five years. I am a better person because of her.
I also dedicate this site to my older daughter, Kira Lorraine, who has weathered the storms of having a chronically ill sister with all the spunk she can muster. Her kindness and compassion will hopefully be carried with her throughout her life and on whatever journey she travels. I love you, girls!
Born of my love for my child and my determination to do anything I can to help with the cause, I hope this website gives you a starting point in understanding Cystic Fibrosis and what it means for our family.
Be a hero. Designate yourself as an organ donor.
SUPPORT THE CFF The Cystic Fibrosis Foundation is working every day in the fight for a cure. Please give to the CFF in hopes of adding more tomorrows for those living with CF. For more information on CF and the Foundation, please visit www.cff.org
HELEN DEVOS CHILDREN'S HOSPITAL Our local children's hospital is focused on family-centered care and providing the best medical technology available for over 40 pediatric specialties. Read all about them here.
CAREPAGES A wonderful resource for families, CarePages provides a specially designed website free of charge that can be used to share your medical journey with friends and family using a secure login. I recommend them to everyone I know! Email me for Allison's CarePage ID.